We finally heard back from Dr. Liau last night. She said that the brain tumor board (that always seems weird to say) reviewed my scan yesterday, and although they agree there has been some growth of the tumor, it’s nothing major. They agree with our decision to proceed with chemotherapy and get another scan in a couple of months. If the scan is stable at that time, then they recommend just staying on Temodar. If it is growing, then they recommend radiation. This is GREAT news!! All we were looking for was confirmation of our decision to do chemo. They recommended doing radiation ASAP last May, rather than chemo. So thank you to all of you who prayed about yesterday for us. They were answered. We are blessed.
I have to say that if you or anybody you know needs a neurosurgeon, I can’t recommend Dr. Linda Liau enough. She is one of the most amazing people I have ever come across. No doctor that I know of will let you email them directly, nor will they respond promptly or at all, if you do. All of my doctors are amazed that she will converse with me in this manner. She sent this email at midnight last night. She is so full of compassion for her patients, and is one of the most knowledgeable in the field of brain tumors. After my last surgery, she came and sat down with me on my bed in the hospital to let me know her thoughts on everything and to see if I had any questions or concerns. I have a whole plethora of doctors in my life, but not one of them would ever display this much concern and compassion. She so genuinely concerned and such a comfort for me as I walk this journey. I’m so blessed, and feel like I couldn’t be in better hands.
So at this point, I will continue on chemotherapy, along with adjunctive therapy to keep my immune system boosted and give us multiple angles of attack on this pesky thing. I will get a follow-up scan somewhere around the first of May, and we’ll just go from there.
That’s our story and we’re stickin’ to it!
Praise God, He is so faithful. We are standing with you until this thing is gone, gone GONE!!! NO RADIATION NEEDED:) Love you!
GOD BLESS YOU AND YOUR FAMILY!!!
So thrilled to hear this good report!! It’s so encouraging to see how God is guiding and holding you through this journey.
Charysse, been keeping up on your blog, so thought I should leave a comment. 🙂 So glad to hear the positive news. You are always in my prayers, in my thoughts…you and your family. You are so right about doctors..how blessed you are to have Dr. Liau.