We got home yesterday from our trip to UCLA. I can't even begin to explain to you how thrilled I am to be done with that place for awhile. I'm so ready for life to just settle down and for us to find some sort of normal, whatever that may look like. I don't like [...]
I received an email from Dr. Liau and there was not any additional pathology available this week from my surgery, so they will bring my case up next Wednesday at tumor board to see if there is more information. This is what I do know, though. At this point, we will be flying back down [...]
I know I wasn't very diligent about keeping anybody updated while I was down south. It was killing me, but the biggest reason was that my pain factor is quite a bit more significant with this surgery than it has been with any of the past surgeries. I was able to jabber a little bit [...]
Good news: the surgery went as planned and Charysse is doing well! We just met with Dr. Liau and she told us that she was able to remove the majority of the tumor. The tumor that is left is simply inoperable. The initial reports from pathology indicate that the tumor is still low grade—yay!—however we will [...]
The word that sums up these past several days perfectly. This is the third time that we have traveled this road. This will be the fourth surgery, but only the third here at UCLA. We arrived here late Monday night. I had pre-op appointments on Tuseday which cleared me to have surgery tomorrow. This includes [...]
We went to UCLA this past week to get some follow up scans done on their MRI and PET scanner and then had a follow up appointment with Dr. Liau. We did this down there because their PET scanner is more sensitive to low grade glioma cells, which is what we assumed my tumor was [...]